fbpage
Are Telehealth Advances Leaving Seniors Behind?

Are Telehealth Advances Leaving Seniors Behind?

Telehealth appointments with physicians. Family gatherings on Zoom and FaceTime. Online orders from grocery stores and pharmacies.

These have been lifesavers for many older adults staying at home during the coronavirus pandemic. But an unprecedented shift to virtual interactions has a downside: Large numbers of seniors are unable to participate.

Telehealth have-nots include older adults with dementia (14% of those 71 and older), hearing loss (nearly two-thirds of those 70 and older) and impaired vision (13.5% of those 65 and older), who can have a hard time using digital devices and programs designed without their needs in mind. (Think small icons, difficult-to-read typefaces, inadequate captioning among the hurdles.)

Many older adults with limited financial resources also may not be able to afford devices or the associated internet service fees. (Half of seniors living alone and 23% of those in two-person households are unable to afford basic necessities.) Others cannot make use of telehealth resources because they are not adept at using technology and lack the assistance to learn.

During the pandemic, which has hit older adults especially hard, this divide between technology “haves” and “have-nots” has serious consequences.

Older adults in the “haves” group have more access to virtual social interactions and telehealth services, and more opportunities to secure essential supplies online. Meanwhile, the “have-nots” are at greater risk of social isolation, forgoing medical care and being without food or other necessary items.

Dr. Charlotte Yeh, chief medical officer for AARP Services, observed difficulties associated with technology this year when trying to remotely teach her 92-year-old father how to use an iPhone. She lives in Boston; her father lives in Pittsburgh.

Yeh’s mother had always handled communication for the couple, but she was in a nursing home after being hospitalized for pneumonia. Because of the pandemic, the home had closed to visitors. To talk to her and other family members, Yeh’s father had to resort to technology.

But various impairments got in the way: Yeh’s father is blind in one eye, with severe hearing loss and a cochlear implant, and he had trouble hearing conversations over the iPhone. And it was more difficult than Yeh expected to find an easy-to-use iPhone app that accurately translates speech into captions.

Often, family members would try to arrange Zoom meetings. For these, Yeh’s father used a computer but still had problems because he could not read the very small captions on Zoom. A tech-savvy granddaughter solved that problem by connecting a tablet with a separate transcription program.

When Yeh’s mother, who was 90, came home in early April, physicians treating her for metastatic lung cancer wanted to arrange telehealth visits. But this could not occur via cellphone (the screen was too small) or her computer (too hard to move it around). Physicians could examine lesions around the older woman’s mouth only when a tablet was held at just the right angle, with a phone’s flashlight aimed at it for extra light.

“It was like a three-ring circus,” Yeh said. Her family had the resources needed to solve these problems; many do not, she noted. Yeh’s mother passed away in July; her father is now living alone, making him more dependent on technology than ever.

When SCAN Health Plan, a Medicare Advantage plan with 215,000 members in California , surveyed its most vulnerable members after the pandemic hit, it discovered that about one-third did not have access to the technology needed for a telehealth appointment. The Centers for Medicare & Medicaid Services had expanded the use of telehealth in March.

Other barriers also stood in the way of serving SCAN’s members remotely. Many people needed translation services, which are difficult to arrange for telehealth visits. “We realized language barriers are a big thing,” said Eve Gelb, SCAN’s senior vice president of health care services.

Nearly 40% of the plan’s members have vision issues that interfere with their ability to use digital devices; 28% have a clinically significant hearing impairment.

“We need to target interventions to help these people,” Gelb said. SCAN is considering sending community health workers into the homes of vulnerable members to help them conduct telehealth visits. Also, it may give members easy-to-use devices, with essential functions already set up, to keep at home, Gelb said.

Landmark Health serves a highly vulnerable group of 42,000 people in 14 states, bringing services into patients’ homes. Its average patient is nearly 80 years old, with eight medical conditions. After the first few weeks of the pandemic, Landmark halted in-person visits to homes because personal protective equipment, or PPE, was in short supply.

Instead, Landmark tried to deliver care remotely. It soon discovered that fewer than 25% of patients had appropriate technology and knew how to use it, according to Nick Loporcaro, the chief executive officer. “Telehealth is not the panacea, especially for this population,” he said.

Landmark plans to experiment with what he calls “facilitated telehealth”: nonmedical staff members bringing devices to patients’ homes and managing telehealth visits. (It now has enough PPE to make this possible.) And it, too, is looking at technology that it can give to members.

One alternative gaining attention is GrandPad, a tablet loaded with senior-friendly apps designed for adults 75 and older. In July, the National PACE Association, whose members run programs providing comprehensive services to frail seniors who live at home, announced a partnership with GrandPad to encourage adoption of this technology.

“Everyone is scrambling to move to this new remote care model and looking for options,” said Scott Lien, the company’s co-founder and chief executive officer.

PACE Southeast Michigan purchased 125 GrandPads for highly vulnerable members after closing five centers in March where seniors receive services. The devices have been “remarkably successful” in facilitating video-streamed social and telehealth interactions and allowing nurses and social workers to address emerging needs, said Roger Anderson, senior director of operational support and innovation.

Another alternative is technology from iN2L (an acronym for It’s Never Too Late), a company that specializes in serving people with dementia. In Florida, under a new program sponsored by the state’s Department of Elder Affairs, iN2L tablets loaded with dementia-specific content have been distributed to 300 nursing homes and assisted living centers.

The goal is to help seniors with cognitive impairment connect virtually with friends and family and engage in online activities that ease social isolation, said Sam Fazio, senior director of quality care and psychosocial research at the Alzheimer’s Association, a partner in the effort. But because of budget constraints, only two tablets are being sent to each long-term care community.

Families report it can be difficult to schedule adequate time with loved ones when only a few devices are available. This happened to Maitely Weismann’s 77-year-old mother after she moved into a short-staffed Los Angeles memory care facility in March. After seeing how hard it was to connect, Weismann, who lives in Los Angeles, gave her mother an iPad and hired an aide to ensure that mother and daughter were able to talk each night.

Without the aide’s assistance, Weismann’s mother would end up accidentally pausing the video or turning off the device. “She probably wanted to reach out and touch me, and when she touched the screen it would go blank and she’d panic,” Weismann said.

What’s needed going forward? Laurie Orlov, founder of the blog Aging in Place Technology Watch, said nursing homes, assisted living centers and senior communities need to install communitywide Wi-Fi services — something that many lack.

“We need to enable Zoom get-togethers. We need the ability to put voice technology in individual rooms, so people can access Amazon Alexa or Google products,” she said. “We need more group activities that enable multiple residents to communicate with each other virtually. And we need vendors to bundle connectivity, devices, training and service in packages designed for older adults.”

Originally published by KHN (Kaiser Health News), a nonprofit news service covering health issues. KHN is an editorially independent program of KFF (Kaiser Family Foundation), which is not affiliated with Kaiser Permanente.

As Senior Communities Try to Shut Out Virus, Residents Feel Locked In

As Senior Communities Try to Shut Out Virus, Residents Feel Locked In

With tight restrictions in place at their continuing care retirement community, Tom and Janice Showler are getting on each other’s nerves.

Most days, Tom, 76, likes to drive out of their community ― Asbury Springhill in Erie, Pennsylvania — to the store to pick up a few items.

“If you follow the right protocols, the likelihood is quite low that we would come down with coronavirus,” Tom said. “If I didn’t go out at all, I’d feel like the walls were closing in on me.”

Janice, 72, doesn’t think that’s a good idea. She has rheumatoid arthritis, an autoimmune condition that raises her risk of becoming seriously ill from the virus. Her father died of pneumonia, and “what terrifies me more than anything is not being able to breathe,” she said.

With her fear and Tom’s need for independence, “it’s become a bit of a power struggle,” Janice admitted.

Across the country, seniors’ lives are being upended as continuing care retirement communities take aggressive steps to protect residents from COVID-19, the illness caused by the novel coronavirus.

These communities offer a spectrum of services ― independent living, assisted living and nursing home care — serving older adults with disparate needs, from the very healthy to the very ill.

Since mid-March, aided by guidance  from the Centers for Disease Control and Prevention, many places have instituted strict policies. Most often, group activities are being canceled. Nonessential visitors aren’t allowed. Dining rooms have closed, and meals are being delivered to people in their rooms. Staffers are screened (this includes a temperature check) when they enter and exit campuses.

And all residents, including seniors in independent living, are being asked to stay in their rooms most of the time. Leaving campus is strongly discouraged.

Minimizing the risk of contagion and ensuring the safety of residents is a top priority, said Henry Moehring, senior vice president of Asbury Communities, which operates eight of these communities in Maryland, Pennsylvania and Tennessee, including the center where the Showlers live.

Across the nation, there are about 1,900 such communities. Yet there’s no national data about the number of residents or staff members who’ve become infected with the coronavirus or died.

Nor is there reliable information about the extent to which testing for the virus is available in these communities. Anecdotal evidence suggests it is hard to get, as is personal protective equipment for staff.

This month, the CDC published the first study of COVID-19 in a Seattle community that combines independent and assisted living. One key finding: Three residents who tested positive for COVID-19 did not have symptoms. This calls into question the common practice of focusing on people with symptoms while trying to prevent the virus’s spread.

Another finding: The community’s early measures to contain the coronavirus appear to have succeeded. This may be because residents were able to practice social distancing and had relatively little contact with health care providers, researchers suggest.

Janet Schroeder, 86, lives at Three Crowns Park in Evanston, Illinois, an independent living and assisted living community where three residents were found to have COVID-19. Two have died. So far, state and local health officials have declined to test other residents. They say testing isn’t recommended for people who are asymptomatic.

Three Crowns has closed its garage, so residents can’t take their cars out. People are being asked to stay in their rooms. If they leave campus, they will be “asked not to return for the foreseeable future,” according to materials from Three Crowns cited in a local news report. The facility’s executive director did not respond to several requests for comment.

“Absolutely, I’m beginning to feel cooped up. Sometimes, I get very tired of my apartment. I want to get out and go someplace,” Schroeder said. “I miss seeing people.”

Initially, she said, she was “shocked and scared” to learn that COVID-19 was in the community, but now “I feel very confident that people here are taking good care of it and taking good care of us. As long as they hold the line and we all do what we’re supposed to do, I think it’s going to be OK.”

At Asbury Methodist Village in Gaithersburg, Maryland, which has about 1,400 residents, Mary Ellen Bliss, 78, has been helping to form “clusters” of residents who regularly check in with each other and “provide backup for anyone who has a problem.” She lives in an independent living section of the community called “the village,” where people have small houses.

Over the past several weeks, Bliss has noticed a marked change in attitude among friends and neighbors: “Even a week ago, some people were pretty indignant at the restrictions being put into place. They felt they were cautious and the rules shouldn’t apply to them: They should be allowed to come and go as they wished.”

But as reports of COVID-19 patients flooding hospitals and dying in nursing homes have multiplied, “pretty much everyone is all on board and what sounded excessive a few weeks ago now seems quite reasonable,” Bliss said.

As of last week, Asbury had reported two COVID-19 cases at its Gaithersburg campus: a resident, who was self-quarantining and asymptomatic, and a staff member who hadn’t worked on the campus since mid-March. None of its other communities were known to be affected.

Of course, some residents just won’t listen and insist on venturing out to stores or to see family. This has been an issue at Five Star Premier Residences of Yonkers in New York, where three residents tested positive for the coronavirus at the end of March.

“We are working to keep everyone safe inside the building. Residents heading outside our gates community at this point [are] asking for trouble. YOU must help me here as some of our residents do not realize how serious this is,” wrote John Hunt, executive director, in a March 29 advisory to residents.

A corporate official at Five Star Senior Living declined to comment.

“Every community will find there are certain people who have difficulty complying with requests,” said Kristin Hambleton, vice president of marketing for Presbyterian Senior Living, which operates 12 continuing care retirement communities in Pennsylvania, Delaware, Maryland and Ohio.

“We are addressing each of those people on an individual basis and discussing with them how their choices can impact the people they live with and the staff that works here.”

At the start of April, two staff members at Presbyterian Senior Living tested positive for COVID-19. “No residents were exposed while they were exhibiting symptoms,” Hambleton said.

Within the communities, threats other than COVID-19 abound. Without regular contact with other people, older adults can become lonely or depressed. A change in someone’s health status that might have been noticed if they didn’t show up for dinner can now go unobserved. Without stimulation, motivation and cognition can decline.

Communities have responded by having staff check in regularly with vulnerable residents, offering to arrange video visits with family members, organizing Zoom interest groups for residents and creating programming, such as exercise sessions, broadcast over closed-circuit, in-house television stations.

Sustaining residents’ and staffers’ spirits over the difficult weeks ahead is a priority for Stephen Colwell, executive director at NewBridge on the Charles in Dedham, Massachusetts, a community with 256 independent living apartments, 51 assisted living apartments, a 40-apartment memory care unit and a 220-bed nursing home on a 162-acre campus.

“We’ve made so many changes so quickly, we’ve treated this like a sprint,” he said. “But the fact is, this is going to be a marathon for all of us.”

“Their efforts really help to smooth out what is an incredibly difficult time here,” said Benita Ross, 71, who lives in a two-bedroom cottage on the community campus. Every day, though, she worries about her three sons, who are physicians, and friends in their 80s and 90s whose health is fragile.

“There’s intense anxiety that your family or friends may get sick and die,” she said. “It’s terrifying, and there’s not a damn thing you can do about it.”

Kaiser Health News is a nonprofit news service covering health issues. It is an editorially independent program of the Kaiser Family Foundation, which is not affiliated with Kaiser Permanente.